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Nicholas has now had his new twin bed for about a week and he's loving it! My co-worker, Lisa, was so generous to give us this bed that was collecting dust in their spare room, complete with a foam topper that's been great with absorbing Nicholas's weight and making it comfortable for him to sleep at night since he cannot reposition himself as he sleeps. He's sleeping wonderfully-up to 12 hours at a time-which means that mom and dad sleep wonderfully too! I bought him some transportation bedding to go with his new room theme and he loves it...he makes truck sounds and car beeps every time we walk in. I will post some photos of his finished room very soon, but just wanted to share a couple of our big two-year-old boy in his new bed.


My youngest brother, Eric, is getting a lot better at wakeboarding this summer, partly because of his new board that he's riding. My other brother, Brett, works for Ronix wakeboards and Radar waterskis and Eric and Jeff don't mind trying out new products Brett sends them.
Jeff and I haven't taken too many photos together lately so Eric snapped a quick one of us right before Jeff was about to wakeboard. I am now 32 weeks pregnant and feeling pretty good...a little tired again and am dealing with swollen feet on really hot days, but all in all, feeling great!
Brett now lives in Florida and has been in town for a few days visiting us before he has to head up to Seattle for annual Ronix meetings. He loves being home to see his family and his girlfriend, Lisa. Lisa and Brett have had a long distance relationship for about seven months now, but that will all change when she moves to Florida in October. Aren't they a cute couple?

Nicholas is checking out the huge stuffed bear and moose at Shriners. His OT, April, took us on the elevator to a floor Nicholas had never been on to find these huge, furry creatures. He was amazed by their size at a little afraid at first, but then warmed up to them and made "Grrr" noises.
Wednesday, July 28, 2010
Nicholas's Big Boy Bed
Tuesday, July 27, 2010
One of My Favorite Things About Summer...
is going boating on the Columbia River. This is where Jeff and I met and fell in love five years ago. I still love watching him wakeboard...he's pretty darn amazing!
I simply love summertime!
Monday, July 19, 2010
Busy, Busy, Busy
Boy, this summer seems to be zipping by! I realized I haven't posted anything on here in nearly a month so I thought it was time to let you all know what we've been up to...
- I think I am in the nesting stage of my pregnancy because it seems that our house cannot ever be clean enough or organized enough for me! We finished painting the walls in the baby's nursery last week (two different shades of pink) and I love it! Her crib bedding has arrived and she has some clothes hanging in the closet now, so this week we will be getting Nicholas's twin bed and moving the crib, changing table/dresser, and rocking chair into the nursery. I also need to get out all of the baby items...the bouncer, swing, moses basket out of Nicholas's closet and transfer them to the nursery. I will post photos of both the nursery and Nicholas's updated room as soon as they are finished.
- Since we've been cleaning and organizing like crazy, we've also been selling lots of things that were stored in the spare bedroom, which is now the nursery. It feels good to get rid of so many things that were unused or not needed anymore.
- We've decided it's in Nicholas's best interest to have a g-tube inserted into his stomach for feeding purposes. Our little guy is now a reluctant eater and Jeff and I are worried that he may be aspirating as he eats since he becomes very phlemy and starts coughing now after eating food (not when drinking). So we set-up an appointment at OHSU to see a doctor to get more information.
- We've been getting lots of yard work done around our home. We planed some flowers, laid bark dust in the flowerbeds, and pressure washed the patio and driveway. It's so peaceful to sit in the backyard now. We've enjoyed several family dinners on the patio in the evenings, but are always sure to spray on plenty of bug repellent because those mosquitoes are soooooo bad this year!
- We've also been enjoying BBQ's with friends, especially our lovely neighbors who we spent the 4th of July with, and who generously let us come swim in their pool on those warm summer days.
Below are a couple of photos of Nicholas taken in the last few weeks... Nicholas loves Jami & Kris's new husky puppy, Nakita. She's only 9 weeks old and so cute! She licked Nicholas's face and he loved petting her. He kept saying, "Woof!" which is his word for dog.
So I guess that sums it up for now.
Happy summer!
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Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
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Falling In Love
Our Wedding Day

Brother & Sister Love

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Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year

Nicholas at 2 Years

Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
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Ity Bitty Baby Ella

Ella at 1 Year

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Ella at 5 Years
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