I am so happy that Nicholas's appetite seems to be returning! After a few weeks of drinking only Pediasure smoothies (blended with vanilla ice-cream) and eating only one meal a day, today our little guy ate a whole bowl of oatmeal for breakfast along with a sippy cup of Pediasure and two fish sticks, shredded cheese, yogurt, and juice for lunch. Hopefully he will eat dinner just as well. Jeff and I were starting to get worried about his eating habits, so after speaking with his nutritionist we decided to order Kids Boost Essentials which is similar to Pediasure but with triple the calories. It is the same stuff he would be fed through a feeding tube, if he had one. We should receive it by next week and we will be adding that to his diet instead of the Pediasure. We pray that he continues to eat full meals and starts to gain some weight. 
Yesterday, Nicholas received an early birthday present from his Godmother, Lyndsey. She sent him an electronic Thomas the train set and he loves it!
When I laid him next to it to watch it go around the track he said, "Wow!" and started making train sounds-"Choo-choo," as it went 'round and 'round. Thanks for such a great gift, L! I think you can tell by his expression in the photo how much he loves it.
Another new thing is the wrist supports Nicholas received a couple weeks ago. His wrists are very floppy so the supports help give him stability when he is doing various activities. For example, today when he was reading a book, it was easier for him to turn the pages and move his hands to touch the pictures on each page. They also help him to play with many of his toys since his fingers are free, but his wrists are supported.
Next Thursday our little guy will turn two years-old. I am so thrilled to see him celebrate this birthday. When he was diagnosed at ten months we were not sure that he would live long enough to see his second year of life. We are so blessed that he has made it this far and are so happy to see him thriving with such a devastating disease. Thank you for all your prayers, constant support, and words of encouragement.
Yesterday, Nicholas received an early birthday present from his Godmother, Lyndsey. She sent him an electronic Thomas the train set and he loves it!
When I laid him next to it to watch it go around the track he said, "Wow!" and started making train sounds-"Choo-choo," as it went 'round and 'round. Thanks for such a great gift, L! I think you can tell by his expression in the photo how much he loves it.
Another new thing is the wrist supports Nicholas received a couple weeks ago. His wrists are very floppy so the supports help give him stability when he is doing various activities. For example, today when he was reading a book, it was easier for him to turn the pages and move his hands to touch the pictures on each page. They also help him to play with many of his toys since his fingers are free, but his wrists are supported.
Next Thursday our little guy will turn two years-old. I am so thrilled to see him celebrate this birthday. When he was diagnosed at ten months we were not sure that he would live long enough to see his second year of life. We are so blessed that he has made it this far and are so happy to see him thriving with such a devastating disease. Thank you for all your prayers, constant support, and words of encouragement.We love you so very much, our sweet little boy!
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1 comments:
Oh that is so exciting! I am so happy for Nicholas! I love it when Alexander eats like that... Boost Kid Essentials 1.5 Cal is what he is on as well! I hope it works well for Nicholas. Plus, our insurance actually will pay some for that, but would not for Pediasure. I am so glad things are going well! Nicholas and your family are always in a prayers!
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