A Little Bit About Nicholas...

Our sweet three-year-old has been doing so well in the past few months and we are so happy! He saw his pulmonologist last Thursday and we were surprised and happy to learn that he know weighs 29 pounds which finally puts him on the weight chart in the tenth percentile. It is such a relief to know that his amino acid diet is working so well for his little body. We are also working with his pulmonologist to try to get Nicholas some portable oxygen for those emergency situations where oxygen is necessary.

Nicholas's new school district was so generous in purchasing a universal arm for his iPad earlier this summer and he loves watching PBS kids and Netflix shows on it.

Also a few weeks ago Nicholas received a beautiful dinosaur blanket from B4SMA, which is a blanket charity started by two women, MJ Purk (who is living with SMA and who is featured on an earlier post) and Brenda Hanson (who is MJ's caregiver and good friend). He loves his blanket and the cute stuffed frog and other toys that came in the package. Thank you MJ & Brenda for thinking of our little boy!

Nicholas's school year starts tomorrow! I cannot believe our son is old enough to attend preschool already. He will be participating in his class for circle time and free time via web cam and we will be doing all of the classroom learning activities together at home. I am gearing up for a school year of letters, painting, numbers, literature, and fun!