Little baby in her princess towel
Nicholas is starting to love Ella more and more...except when she flails her arms and legs and accidentally hits him
The kids' stockings are ready for St. Nick to fill them on Christmas Eve
Nicholas has been feeling so much better since we started him on a new amino acid diet last Thursday. He gets juiced fruits and veggies with his AA formula and gets pumped breast milk at nap time now. He is sleeping better, his stats are higher, he is talking more, and moving his hands and fingers more. His old formula was just too difficult for his body to break down and digest so we are relived to find a better diet for him!
Here he is holding his "wand" and a new ping-pong ball. They are among his new favorite toys!
I mentioned in a previous post how much Nicholas loves watching Finding Nemo and my friend, Catie, took note. She sent Nicholas this faux aquarium which he enjoys watching while he falls asleep.
Catie also sent Ella a lot of clothes that her daughter has outgrown so now Ella's closet is packed full of adorable outfits. Thanks, Catie for thinking of our kiddos!
My two precious children
Nicholas is starting to love Ella more and more...except when she flails her arms and legs and accidentally hits him
The kids' stockings are ready for St. Nick to fill them on Christmas EveNicholas has been feeling so much better since we started him on a new amino acid diet last Thursday. He gets juiced fruits and veggies with his AA formula and gets pumped breast milk at nap time now. He is sleeping better, his stats are higher, he is talking more, and moving his hands and fingers more. His old formula was just too difficult for his body to break down and digest so we are relived to find a better diet for him!Here he is holding his "wand" and a new ping-pong ball. They are among his new favorite toys!I mentioned in a previous post how much Nicholas loves watching Finding Nemo and my friend, Catie, took note. She sent Nicholas this faux aquarium which he enjoys watching while he falls asleep. Catie also sent Ella a lot of clothes that her daughter has outgrown so now Ella's closet is packed full of adorable outfits. Thanks, Catie for thinking of our kiddos!My two precious children
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3 comments:
They are really cute stockings! Your kids are really cute! Nicholas looks so strong. Is he type 2? Have you done testing on Ella to see if she's SMA free? I hope you guys have a Merry Christmas.
Nicholas was diagnosed as a weak type 2 because he could sit up for short periods of time around 8 months to 1.5 years-old. He cannot sit up anymore though so I think he is considered a strong type 1/weak type 2. We did prenatal testing with Ella at 12 weeks and she does not have SMA and isn't a carrier of the disease. Genetics are so strange that way...we have two kids and both on opposite ends of the spectrum. Merry Christmas to you and your adorable family!
I love all the pictures--especially the last one. I like how they're both smiling at each other. What sweethearts! Nicholas has such a cute smile. Glad to read that he is responding well to his new diet.
As a complete stranger, I am so touched by each of your posts and photos. I continue to pray for Nicholas!
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