Nicholas wanted to wish everyone a happy & safe 4th of July!!Saturday, July 4, 2009
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
Popular Posts
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I took this photo one year ago, yesterday. The day Nicholas died. I didn't know in the hours to come that our son would pass away... -
It is with profound sadness and utter disbelief that I write this blog entry... Nicholas, the light of our world and joy of our hearts, wa... -
GUESS WHAT?! A cure for Nicholas and other babies with SMA is right around the corner... literally, like 2010, around the corner ! Can you ... -
Many people have been asking us questions about how Nicholas is doing and where he is in terms of SMA right now, so I thought I would share... -
On Thursday, January 21st, I took a test that would change our lives forever. I had been feeling more tired than usual, napping in the after... -
Any mother will tell you she worries about her children, but the worries of a mother who has a child with a terminal illness are profound . ... -
Elizabeth Rose Gustafson was born five days early on Wednesday, September 15, 2010 at 11:58 a.m. She was 7 lbs 6 oz and 21 inches long. As... -
We have been going to Shriner's weekly this past month to give Nicholas more practice on the power chair . Since he will be turning two... -
I am so behind on blogging. With this being my first year back to classroom teaching after seven years, I will admit that the majority of my... -
Jeff was home for a few days recently and we tried to cram in as much fun into four days as possible. We started with our neices' thirt...
Our Faith
Roman Catholic
Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Rest In Peace, Nicholas
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
Our Daughter
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
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3 comments:
Okay, he is just so cute!!
Hope that you guys had a great holiday!
He is so happy! Showed his pics to my mom from FB. He really has your eyes!
Adorable!
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