The day after Nicholas' sixth birthday, he started coming down with a virus and was feeling pretty yucky. At one point I caught Ella laying beside him comforting him in her little way. It melted my heart to witness such love and compassion for her big brother. It's a treasured moment that I am happy I was able to capture on camera.
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Friday, May 30, 2014
Baby Cousins are the BEST
Nicholas and Ella LOVE their cousin, Vivien.
She's super sweet to Nicholas and really loves to touch his face, which he doesn't mind (too much).
Whenever Vivien visits our house, Ella likes to get the Jolly Jumper out for her to jump in, which Vivi loves as well. Ella also likes to "help" her jump higher.
A couple weekends ago we had dinner at my folks' house and Nicholas loved being on the floor so he could be close to his little cousin.
The girls just happened to be wearing the same color shirt that day and Ella was thrilled that they were "matchies."
Vivi will celebrate her first birthday next week and it's only a matter of time before she's walking!
We love you, Vivi!
Nicholas' 6th Birthday
Nicholas turned SIX on May 20th!! Seriously, I do not feel old enough to have a six-year-old! Once you have kids, time seems to move at warp speed.
With every birthday Nicholas celebrates, we all celebrate the fact that he is thriving despite his Spinal Muscular Atrophy diagnosis. We celebrate the fact that he is still living, here with us, loving every minute of his life despite all his physical challenges and set-backs.
I think these photos speak a thousand words. This child really loves life. He has such a zest and such a deep-rooted happiness that radiates through his smile. He is THE happiest, most joyful person I have ever encountered in all my years and he blessed us daily with his positive attitude and loving demeanor.
For this birthday, I thought it would be nice to get out of the house for a bit and do something fun so I suggested a trip to the store so Nicholas could choose his own birthday gifts. He happily agreed so off we went to {what is probably my favorite store on this planet} Target.
Upon arrival we headed for the toy aisle, but my sweet boy suggested we check out the books first.
I pulled several books from the shelf and told him a little bit about each one until he settled on his pick: a sweet story about a monster who wants others not to be afraid of him, but to simply love him, called Love Monster.
Then we headed to the toy aisle and Nicholas choose a Jake and the Neverland Pirates toy complete with a sword, gold doubloons, and a spyglass.
Then as we were heading to the checkout, Nicholas spotted the rather large green bouncy ball you see pictured below and had to have that too. So we added it to our stash, let Ella choose a toy, and bought our goodies.
Later in the afternoon, Nicholas received a balloon bouquet via special delivery from the Yeomans family which made his day even more special.
That night before bed, we read Nicholas' new book (and many others) which was the perfect ending to his sixth birthday.
Happy birthday Nicholas Alan! You amaze us everyday and we stand in awe of your constant happiness, your amazing courage, and your spirit of love and joy. We love you so very much and are so blessed to have you in our lives. xxoo
Celebrating My 6th Mother's Day
This past Mother's Day was by far one of my favorites. Maybe it's because the kids are old enough to get in on the surprises and fun or maybe it's because I was pampered and spoiled all day. At any rate, it was absolutely fabulous!
These two bright lights are the reason I am a mommy and I feel absolutely blessed every single day that God placed them in our care. They are two of the most loving, compassionate, silliest kiddos and they make us a family. I love them both with my whole heart.
Nicholas' therapists and teachers are the absolute sweetest and they helped the kids create these adorable cards for me. They also let the kids choose flower seeds to plant in small pots which started to sprout by Mother's day. I cannot wait to see what pretty flowers will bloom!
Jeff bought me another bouquet of flowers which I happily added to my birthday bouquet since the two days were only a week apart.
My wonderful husband also made me a scrumptious breakfast complete with the best omelet I have ever tasted, hash browns, and bacon. Mmmm, bacon.
After breakfast we went to mass as a family, then we stopped by Home Depot on the way home and I used a gift card I got for my birthday to buy some new plants for the flowerbeds.
Later that afternoon the kids and I made a card for my mom, who joined us later for a yummy dinner: filet mignon, red potatoes, and roasted brussel sprouts; and we dined al fresco since it was such a gorgeous evening.
A special thank you to my husband and kids for making me feel so special on this wonderful day for moms!
Let's Play Outside!
As always, May weather in the Pacific Northwest changes as often as our toddler changes her outfit. We have many days of nothing but rain interspersed with days of hot, hot sunshine.On a few of the warmer days earlier in the month, Ella spent time cooling off by running through the sprinkler in our backyard.
I also sprayed her with the hose one afternoon while watering some of my plants and flowers, which made her erupt into fits of giggles.
We also sneak off to the park on the nicer days. I think Ella could play on the swings all day. She loves to be pushed by mommy and always asks to be pushed, "higher!!"
She is quite the monkey and loves to climb, hang, and jump too. It's a blessing to live in a community with so many parks for our girl to play.
On sunny, warm days I tend to want to spend as much time outdoors as possible...mowing the grass, tending to the flowerbeds, potting new plants, pulling weeds, and trying to make our yard a little haven for our family of four.
Just last Sunday I started running again with my sister-in-law. I absolutely love to run and even though I am reluctant to begin, once I start, I always end up feeling amazing, especially when this is my view:
I have decided to dedicate three days a week to running in the hopes of achieving some weight loss goals and a healthier lifestyle.
My Birthday
On May 4th I celebrated another birthday. The day before my brithday, I went shopping in downtown Portland with my mom which was such a special treat since we hardly have time to shop together anymore. We also had dinner at a yummy little restaurant and shared a few appetizers and a glass of white wine.
Jeff and the kids bought me a beautiful boquet of flowers for my birthday, we went to mass together, and then later that evening Jeff took me to a special birthday dinner at the Melting Pot which was chalk full of delicious melty goodness. Kris & Jami joined us too which was the icing on the cake.
It was a perfect day and I couldn't asked for anything better! Cheers!
Favorite Photo
Several weeks ago I was washing dishes in the kitchen after dinner when I turned to grab a dirty pan off the stove to clean. I caught a glimpse of Ella in the nude eating her dinner and thought it was photo worthy so I snapped a picture on my phone. It is truly one of the most simple, but most beautiful photos I have ever taken and the toddler buns really help add to the cute factor.
Donate to Nicholas' Memorial Fund
Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
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Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
All About Ella
loving. cuddly. toddler. curious. explorer. walker. silly. happy. sleeper. blessing. fearless. adventurous. kisser. sassy. dancing queen. spirited.
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
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