At the end of October we had our family photos taken by my good friend, Heather Purdin, of Click Photography. She did an outstanding job and I absolutely loved her creative ideas of how to make Nicholas comfortable (since he prefers to be in a reclined position) by using a rod iron bed and antique settee outside in the field by her house. Here are a {few} of my favorite photos from our shoot...
skip to main |
skip to sidebar
Thursday, November 21, 2013
Tuesday, November 19, 2013
Jami's Surprise Party
After months of planning the perfect surprise for his wife, Jami, Kris pulled off a super fun surprise party this past Saturday night. Jeff and I had a great time and were happy to help pull off the surprise for one of our favorite people. The night consisted of happy hour at Slide Inn in Portland, a ride on a groovy limo bus, then more fun later in the evening at the Kalmbach's new place. Jami was completely surprised as she thought her party was suppose to happen at the end of the month so all those months of keeping secrets made the night a total success! Happy 30th birthday beautiful Jami. You are such a wonderful person and we are so blessed to have you in our lives! Cheers to you!
Sunday, November 10, 2013
Novemberness
November 1st was All saints Day. I found this adorable craft on Oriental Trading and I colored it and then used it for a homeschooling lesson on saints. The kids really liked it!
Ella told me that next Halloween she wants to dress as a knight like St. Joan of Arc. She was thrilled to see a woman dressed in armor. I think it's a great choice!
I got this great tip from Pinterest the other day: instead of throwing cut green onions away, simply place them in a jar with water and place in a sunny window and they will continue to grow. I tried it, and sure enough, our onions grew 11 inches in one week! I just trim them with scissors and add them to meals. It's nice to have an easy indoor garden.
I have been in a cooking slump lately so I have been looking at recipes on Pinterest too, trying to find new meal ideas. One I made this week was jalapeno cheese stuffed chicken breasts wrapped in bacon. They were delicious!
We had our family photos taken by a good friend, Heather Purdin of Click Photography, a couple of weeks ago and got a sneak peek of a few of the photos this past week. I LOVE them and cannot wait to see more! The top two with the kids together are my most favorite so far.
We love our home, but its pretty small at just 1400 square feet, so I did not have many options when it came to organizing and storing home school supplies. After some deliberation I decided to clean out this antique icebox my parents gave to us which was just housing some papers anyway. I organized manipulatives, scissors, crayons, markers, thematic literature, lessons, felt boards, and textbooks in this space. I still need to go through a couple of boxes in the attic that are full of my old first/second grade classroom items to see if any will work for preschool and kindergarten curriculum. Then I plan to go to Learning Palace and fill in as needed. So far, everyone loves our new home school routine, me included!
Homeschooling is in full swing and I am so grateful to another homeschooling mama who passed on some manipulates that her children have outgrown. One is pictured here. It's a letter/word puzzle and Nicholas and Ella have enjoyed using it these past couple of weeks. Ella was working on her won here while Nicholas has his OT therapy with his favorite teacher, Pam.
We have been working on sitting tolerance with Nicholas. We are hoping to start a new power chair trial next year and sitting up as much as possible will be important for Nicholas when he starts to drive a power chair. We are also working with another OT, Carrie, to find a seating system that can help with sitting tolerance as our sofa isn't conducive to proper placement and we don't often use his Easy S stroller in the house.
Nicholas has been continuing his eye gaze trials with the Tobii and is having so much success navigating it. Meanwhile, Ella keeps herself entertained with a DVD & a snack.
We've never had many Halloween or Thanksgiving decorations, but as I was navigating through Etsy one afternoon I was happily surprised to find several adorable holiday items for our home, all handmade and all at great prices. I am pretty pleased with our few decorations and will display them for years to come.
Happy fall y'all!
Friday, November 1, 2013
Halloween 2013
I found my huge collection of Halloween and autumn books, which worked out great to incorporate into home schooling this week!
We decorated the house...
and the kids wore their costumes all day, even on our outing to the grocery store to buy Halloween candy.
Ella the mermaid
Nicholas the pirate
Both kids together. Nicholas pretended to be aboard his pirate ship while Ella pretended to swim beside him in the sea.
Later in the evening, the kids' cousins, Zoie and Alex, came over to trick-or-treat with us at our neighborhood. The kids enjoyed walking around together and Alex was so sweet to get an extra candy for Nicholas at the houses that were not easy to access.
Before Ella went to bed that night, she was fretting and worried about something that we couldn't decipher. Finally we relaxed she said, "I can't sleep because there is a blue tarantula under my bed." We thought it was so funny that the large spider was specifically blue, but I then recalled one hanging by the front door of one of the neighbors houses. We spent some time looking under her bed to show her there was no tarantula. Then we explained real and pretend and told her that no spiders that size live in the Pacific Northwest so she was perfectly safe. She seemed to understand that and was asleep in a few minutes, obviously worn out from the excitement of the day...or a sugar crash, it's hard to tell which. Gotta love three year olds!
It was a wonderful, memorable Halloween!
Donate to Nicholas' Memorial Fund
Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
Popular Posts
-
I took this photo one year ago, yesterday. The day Nicholas died. I didn't know in the hours to come that our son would pass away...
-
Many people have been asking us questions about how Nicholas is doing and where he is in terms of SMA right now, so I thought I would share...
-
It is with profound sadness and utter disbelief that I write this blog entry... Nicholas, the light of our world and joy of our hearts, wa...
-
We have been going to Shriner's weekly this past month to give Nicholas more practice on the power chair . Since he will be turning two...
-
Any mother will tell you she worries about her children, but the worries of a mother who has a child with a terminal illness are profound . ...
-
On Thursday, January 21st, I took a test that would change our lives forever. I had been feeling more tired than usual, napping in the after...
-
Elizabeth Rose Gustafson was born five days early on Wednesday, September 15, 2010 at 11:58 a.m. She was 7 lbs 6 oz and 21 inches long. As...
-
Nicholas Alan Gustafson May 20, 2008-February 28, 2015 Forever 6 years-old 6 years, 9 months, 1 week, and 4 days was the amount...
-
I cannot ignore it anymore. I have tried everyday for the past year and a half to ignore it-the fact that my child will most likely leave th...
-
GUESS WHAT?! A cure for Nicholas and other babies with SMA is right around the corner... literally, like 2010, around the corner ! Can you ...
Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
All About Ella
loving. cuddly. toddler. curious. explorer. walker. silly. happy. sleeper. blessing. fearless. adventurous. kisser. sassy. dancing queen. spirited.
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
Followers
Friends
Other Kiddos With SMA
Blogs We Like To Read
Visitors
Translate
Powered by Blogger.




















