We recently had our family photos taken for Christmas and because it was our first photo shoot without Nicholas, we wanted to find small ways to honor him in our pictures. We brought a framed photo of him and it's kind of hard to see his face in the photos, so now we know to bring a larger one next time. We also brought a blue block with the letter 'N' on it and a small black wooden toy car he liked. It was a bittersweet experience as everything is without our son and I found myself getting teary several times during the shoot. I love my family, but without Nicholas it just doesn't seem complete.
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Saturday, December 5, 2015
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Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
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Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
All About Ella
loving. cuddly. toddler. curious. explorer. walker. silly. happy. sleeper. blessing. fearless. adventurous. kisser. sassy. dancing queen. spirited.
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
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2 comments:
Beautiful family! Gorgeous photos. I love how you incorporated Nicolas. Wishing you a very blessed Christmas XOXOX
Hugs,
Paula
Hi jess! It's been a long time. I often think of you and your sweet angel. I just wanted to stop by to wish you a very happy new year! I love reading your posts. Take care. xoxo
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