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Friday, March 2, 2012
Pre-School on Skype
After a three-month hiatus, Nicholas joined his pre-school class again via Skype. Nicholas loved singing songs, listening to his teacher read Chicka, Chicka, Boom, Boom, and talking with his adorable classmates. He was excited to show the kids his balloon after Ms. Wendy did a balloon counting rhyme. I love that we have access to technology that can enhance Nicholas's learning experience without having to send Nicholas to school so that he can stay away from those icky cold and flu germs. However, we are hopeful that he will get to make some trips to school this spring and say hi to his friends in person.
Donate to Nicholas' Memorial Fund
Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
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Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
All About Ella
loving. cuddly. toddler. curious. explorer. walker. silly. happy. sleeper. blessing. fearless. adventurous. kisser. sassy. dancing queen. spirited.
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
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2 comments:
This post brightened my day! Chicka Chicka Boom Boom is such a fun book :)
Jessica, I noticed that Nicholas has a little pillow between his legs. Is he able to sit up for short periods of time? Did you get him back in his wheelchair for a bit (like you mentioned you would try in your previous post)?
Hi Paula!! Nicholas has been able to sit up for short periods of time since he returned from the hospital in December. Usually he sits up for a total of 2-3 hours per day, at 20-30 minutes increments. We have not received a loaner power chair yet, but talked with Nicholas's physical therapist last week and she will contact our rep and see about getting one next month for several weeks!! Thanks for reading and commenting! How have you and your family been?
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