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Sunday, December 13, 2009
Donate to Nicholas' Memorial Fund
Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
Popular Posts
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Guess who turned one today?! Nicholas was very interested in his large brightly wrapped gifts from mom and dad. Mommy spent the morning ba...
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Yesterday I had to save my child's life. It was the most scary thing I have ever had to do. I am still numb with shock and can cry at th...
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Many people have been asking us questions about how Nicholas is doing and where he is in terms of SMA right now, so I thought I would share...
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I cannot ignore it anymore. I have tried everyday for the past year and a half to ignore it-the fact that my child will most likely leave th...
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This morning Jeff, Nicholas and I went to 9:00 a.m. mass at Holy Redeemer. Two of my former colleagues greeted us in the vestibule as we we...
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On Thursday, January 21st, I took a test that would change our lives forever. I had been feeling more tired than usual, napping in the after...
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It is with profound sadness and utter disbelief that I write this blog entry... Nicholas, the light of our world and joy of our hearts, wa...
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Next Tuesday Nicholas, my mom, and I are driving to Salt Lake City, Utah to enroll Nicholas in a clinical trial for SMA . We are driving b...
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Nicholas Alan Gustafson May 20, 2008-February 28, 2015 Forever 6 years-old 6 years, 9 months, 1 week, and 4 days was the amount...
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A friend of mine emailed me this poem and I wanted to share it with everyone because this is exactly how I believe Nicholas was sent to be w...
Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
All About Ella
loving. cuddly. toddler. curious. explorer. walker. silly. happy. sleeper. blessing. fearless. adventurous. kisser. sassy. dancing queen. spirited.
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
Blog Archive
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2009
(168)
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December
(15)
- Plans for New Year's Weekend
- Family Photos
- Simply Having a Wonderful Christmas Time
- A Visit With Old Saint Nick
- 19 Months-Old
- Silly Boy
- Christmas Tree Farm
- Cousin Time
- Another Adapted Idea
- Happily Surprised
- It's Beginning To Look A Lot Like Christmas
- St. Nicholas Day
- Baby, It's Cold Outside
- New Stander & Wheelchair
- A Season of Giving
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December
(15)
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2 comments:
what a beautiful family! Thanks for sharing all the pics, the ones of Nicholas and his cousins are so cute-they definitely love spending time with one another!! Hope you are having a great time getting ready for Christmas, Em
Love your pink coat!
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