Saturday, May 10, 2008
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
Popular Posts
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Many people have been asking us questions about how Nicholas is doing and where he is in terms of SMA right now, so I thought I would share... -
It is with profound sadness and utter disbelief that I write this blog entry... Nicholas, the light of our world and joy of our hearts, wa... -
Nicholas Alan Gustafson May 20, 2008-February 28, 2015 Forever 6 years-old 6 years, 9 months, 1 week, and 4 days was the amount... -
Yesterday I had to save my child's life. It was the most scary thing I have ever had to do. I am still numb with shock and can cry at th... -
Oh, how I wish we lived somewhere over the rainbow and far away from the PICU. Nicholas has RSV and was taken to the hospital by ambulance ... -
We have been going to Shriner's weekly this past month to give Nicholas more practice on the power chair . Since he will be turning two... -
Any mother will tell you she worries about her children, but the worries of a mother who has a child with a terminal illness are profound . ... -
Most of the time I'm fine. Most of the time I focus on all of the positive things in my life: our sweet son, my wonderful husband, amaz... -
I cannot ignore it anymore. I have tried everyday for the past year and a half to ignore it-the fact that my child will most likely leave th...
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On Thursday, January 21st, I took a test that would change our lives forever. I had been feeling more tired than usual, napping in the after...
Our Faith
Roman Catholic
Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Rest In Peace, Nicholas
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
Our Daughter
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
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