Friday, March 26, 2010
No Longer Public
Our blog will not longer be public, due to obscene comments by an anonymous individual. If you would like to continue reading our blog, please send me your email address and I will add you to our invited readers list. Thank you for understanding.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
Popular Posts
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I took this photo one year ago, yesterday. The day Nicholas died. I didn't know in the hours to come that our son would pass away... -
Many people have been asking us questions about how Nicholas is doing and where he is in terms of SMA right now, so I thought I would share... -
It is with profound sadness and utter disbelief that I write this blog entry... Nicholas, the light of our world and joy of our hearts, wa... -
We have been going to Shriner's weekly this past month to give Nicholas more practice on the power chair . Since he will be turning two... -
Any mother will tell you she worries about her children, but the worries of a mother who has a child with a terminal illness are profound . ... -
On Thursday, January 21st, I took a test that would change our lives forever. I had been feeling more tired than usual, napping in the after... -
Elizabeth Rose Gustafson was born five days early on Wednesday, September 15, 2010 at 11:58 a.m. She was 7 lbs 6 oz and 21 inches long. As... -
Nicholas Alan Gustafson May 20, 2008-February 28, 2015 Forever 6 years-old 6 years, 9 months, 1 week, and 4 days was the amount... -
I cannot ignore it anymore. I have tried everyday for the past year and a half to ignore it-the fact that my child will most likely leave th...
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GUESS WHAT?! A cure for Nicholas and other babies with SMA is right around the corner... literally, like 2010, around the corner ! Can you ...
Our Faith
Roman Catholic
Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Rest In Peace, Nicholas
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
Our Daughter
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
4 comments:
I had a feeling something like that happened. That is AWFUL!
Oh no!!! I know several families this has happened to and it makes me so mad. Who the heck has time to bug sweet wonderful families like yours. I hope you are okay. Big hugs!!!
I'm here! Thanks for the invite! You already know my feelings about "Anonymous"
:)
~B
PS. You sent the invite to my Olive blog. I'll send you one to this one so you're not out of the loop. ;)
FYI, I encountered another mom on SMA Space who reminds me of you and her son reminds me of Nicholas. I suggested that she apply to view your blog, I hope you don't mind that I did that. She's Carrie - Tommy's mommy on SMA Space, and her son just turned 1.
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