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On Monday Nicholas got a most wonderful Valentine's Day gift...a practice power chair! Nicholas has been practicing in a power chair since he was one-year-old but we had not been able to get a wheelchair in our home until this week. It's a Permobil chair with a fiber optic driving device which is very easy for Nicholas to navigate. It has been much more motivating for him to use his chair here at home than up at Shriners. He is practicing driving mostly in our living/dining room area because when he tried to visit his bedroom we realized how tight our hallway is when he smashed into the wall heater. We are hoping this rain will go away very soon so Nicholas can get some practice in outside. We live in the ideal neighborhood for him to practice driving-very little traffic during the day and wide open streets. We are hoping to order his very very own power chair close to his third birthday which is coming up in May.
Go, go, little buddy!
Wednesday, February 16, 2011
Practice Power Chair
Donate to Nicholas' Memorial Fund
Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
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Falling In Love
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Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
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loving. cuddly. toddler. curious. explorer. walker. silly. happy. sleeper. blessing. fearless. adventurous. kisser. sassy. dancing queen. spirited.
Ity Bitty Baby Ella
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3 comments:
He looks great in his chair! Ryan also had a red Permobil several years ago. We built our home almost 10 years ago now and we had the builder design our doorways to be extra wide so Ryan wouldn't have such a hard time getting through! Hopefully, the weather clears up soon so he can practice outside. The mall or Costco are great places for Ryan to drive around too!
Nicholas looks like such a happy little man sitting tall in his chair. What a cutie! You go, buddy!
Wonderful Jess! I hope the rain stays away a bit longer too!! And what a blessing to live exactly where you do. I grew up in that neighborhood and it is ideal for Nicholas. :)
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