Very Good Things Are Happening!

Today was one amazing day for me and so many other parents who have a child with SMA. This afternoon, the Recombinant DNA Advisory Committee (RAC) unanimously voted YES to Dr. Kaspar's Gene Therapy program moving forward to the FDA for final approval. This is amazing, awesome, so inspiring, and one giant step closer to the cure we have been praying for. 

I watched part of the podcast on my iPhone this afternoon and saw two amazing mommies giving heartfelt speeches to the committee members about their children. I was in tears when, after a five-minute break, the committee came back and every single committee member voted to go forward with the SMA gene therapy clinical trials!! This means, that hopefully, someday very soon no other parents will ever have to hear the words "terminal" said about their baby. 

And if that isn't exciting enough, our most favorite SMA Foundation-The Gwendolyn Strong Foundation-has been chosen to appear on NBC this Saturday, December 8th on the American Giving Awards. They are one of the foundations appearing to win a whopping one million dollars which will help kids like Nicholas gain access to iPads! iPads allow our kiddos more independence with so many amazing apps to help them cognitively, socially, and verbally. Keep your fingers crossed they win and tune in Saturday evening to see Bill & Victoria Strong (hopefully) win that grand prize!