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Nicholas is now able to sleep in peace & quiet because on Monday he received...
the Trilogy! It is an awesome new ventilator that is much, much quieter than his old one. He also loves the "Ramp" feature on it which makes the pressure start out low and gradually gets up to his prescribed setting as he falls asleep. Now I need to go to Costco and get a cart/shelf for all of his machines and equipment.
This is Nicholas and his buddy, Grant. Grant is such a sweet little boy and loves "Nicky" so much!
Nicholas has been wanting to sit-up more and more and his neck pillow gives his head just the right amount of support.
Our wonderful neighbor & good friend, Leslie, recently cleaned out a closet full of her children's baby items and passed on a bath chair to Ella. She loves it and it makes bath time so much easier.
Tonight Ella started sitting up on her own. She's such a big girl!
I love this photo of the kids...Ella is able to make Nicholas laugh and they just love each other more and more each day.
I ordered this birth announcement for Ella's bedroom from my absolute favorite site (etsy) and then found a frame that I wanted to use to frame it. Because the frame is an 11x14 and the announcement is an 8x10 I decided to create a scrapbook paper and ribbon border for it and I think it turned out great.
Wednesday, April 6, 2011
What We've Been Up To...
Donate to Nicholas' Memorial Fund
Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
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Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
All About Ella
loving. cuddly. toddler. curious. explorer. walker. silly. happy. sleeper. blessing. fearless. adventurous. kisser. sassy. dancing queen. spirited.
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
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1 comments:
What a great post. I enjoyed reading all the pieces--perfectly titled. Nicholas looks so cute sitting tall in his chair and Ella is such a sweetie. Look at the grip on that bottle! What a precious picture of the two of them :) I love the birth announcement and thanks for sharing the website. I'll be ordering some items myself!
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