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Ella loves her big brother and he is so enamored with her. This morning he wanted his chair to be placed on the floor so he could be close to her, and she couldn't wait to snuggle up next to him. Later, when I started his morning feed I put his chair up on the base (so Ella wouldn't have access to his g-tube) and he was so disappointed to be away from her that he cried and cried. So I put her in her high chair, which can be adjusted to be the same height as his chair, and they watched Pocoyo together while Ella held his hand. That made him very happy and his tears dried up right away.
I am so happy to report that Nicholas is doing very well. He had a slight cold last week, but seems to be recovering pretty quickly. He is so full of joy and happiness every day and feels fantastic! Life around the Gustafson house has been uneventful the last couple months, but that is just how we like it!
In the next couple months we are planning to get an eye gaze system for Nicholas to trial to see how he likes it. Our fabulous OT found a local therapist who holds monthly clinics where kids can come and try various types of adapted technology. We are excited for Nicholas to try one which will hopefully give him a bit of independence!
Saturday, October 22, 2011
Two Peas in a Pod
Donate to Nicholas' Memorial Fund
Information about Spinal Muscular Atrophy (SMA)
Click HERE to learn about Spinal Muscular Atrophy.
About Me
- Jessica
- Washington, United States
- We are the Gustafsons: Daddy Jeff, Mommy Jessica, Big Brother Nicholas and Little Sister Elizabeth. We started our blog in 2008 when our son was born as a way to document our life. Jeff and I feel so blessed to be parents to two amazing kids. Our oldest, Nicholas, was diagnosed with a terminal condition called Spinal Muscular Atrophy. We are praying for a cure for Nicholas and all children who suffer from this physically limiting diagnosis. We are also parents to a little girl who who brings us sunshine and laughter everyday. We treasure every moment with our sweet kiddos. Please let us know you visited our blog by leaving us comment. May God bless you today and always.
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Falling In Love
Our Wedding Day
Brother & Sister Love
Motherhood
Nicholas's Story
Click HERE to read Nicholas's story from birth to his diagnosis with SMA at 10 months-old.
All About Nicholas
sweet. easy-going. smiley. happy. fighter. playful. courageous. loving. joyful. amazing. gift. wise. strong. handsome. kind. brave. Heaven-sent.
Nicholas's Birthday
Nicholas at 1 Year
Nicholas at 2 Years
Nicholas at 3 Years
Nicholas at 4 Years
Nicholas at 5 Years
Nicholas at 6 Years
All About Ella
loving. cuddly. toddler. curious. explorer. walker. silly. happy. sleeper. blessing. fearless. adventurous. kisser. sassy. dancing queen. spirited.
Ity Bitty Baby Ella
Ella at 1 Year
Ella at 2 Years
Ella at 3 Years
Ella at 4 Years
Ella at 5 Years
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1 comments:
Look at Ella just admiring her big brother in the first photo and Nicholas loving every minute of it! What sweeties! Nicholas looks like such a big little man now... he looks healthy and it looks likes he has put on a little bit of weights too--which is a good thing. I know that one of the reasons Nicholas is thriving is due to the love, support, and great care you give him :)
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